We had the pleasure of meeting sweet Allison and her beautiful family on Saturday, September 3, 2011. At this time Allison told us she wanted to get out of the house (she’s been stuck inside with limited mobility for quite some time). Her dream was a Build A Bear Workshop shopping spree! Allison also requested a very special bear, a dragon that will be the signature bear for Cook Children’s Build A Bear Workshop. As of now, the dragon is not even in production and only a hand full of prototypes are in existence. I am happy to say that we were able to make Allison’s dream a reality! Due to her unexpected decline Allison was unable to visit the Build A Bear Workshop, but we brought Build A Bear to her! Allison is now a proud bear mommy to over 40 bears, including Mr. Dragon! We had the pleasure of delivering these special bears on Saturday, September 10, 2011 along with pink and purple balloons (Alli’s favorite colors), an extra special life size teddy, a chocolate teddy bear cake, dressed as a fisherman, just like Miss Allison and lunch from El Fenix, Allison’s special request of Tamales and queso.

Allison had been treated for headaches and migraines for some time. On Thursday, March 4, 2010, Allison had an increase in symptoms and was taken to the ER on Saturday, March 6th. It was on this day that the Long family would be changed forever. Tests were performed, and it was determined that the cause of Allison’s symptoms was a brain tumor. Allison was diagnosed with a rare, inoperable brain tumor known as a diffuse intrinsic pontine glioma (DIPG). Allison was 10 years 3 months old at the time of diagnosis. Our love and prayers are with the Long family during this difficult time.

From Mom’s Blog September 6, 2011
This tumor is an ugly thing, and is slowly taking more and more from our brave girl. Allison has for the most part lost the use of her right hand and arm, and this is very frustrating for her as she is right handed. We are encouraging her to try to use her left hand, which she does, and she constantly pushes us away if we try to help her, she is so independent and wants to do things herself, no matter how difficult it is for her. Her determination and will are amazing. Eating and drinking are also difficult, but she does things her way and makes it work. She still has a passion for pickles and has them daily — she will sometimes nibble at one for several hours. She had a rough afternoon yesterday and we ended up calling a nurse out, and adjustments were made to her pain medication, and we were able to get things back under control. The down side was that she slept about 12 hours after the episode, and developed severe congestion today. We contacted her medical team again, and they have been taking care of her thru the evening to get her comfortable again.

From Mom’s Blog September 9, 2011
The last few days have been hard. We know that the coming days are going to be harder. Our beautiful girl is slipping away from us and as much as we want to, there is little we can do to prevent this. This past Tuesday marked 18 months since that day in March when we received the devastating news that Allison had a brain tumor. We have had so much more time that we thought we would, but it is still not enough – it will never be enough. Allison’s condition has deteriorated rapidly over the last 7 days, and we are doing our best to make sure she is comfortable. She is no longer eating, and only drinking small sips of water. She slept almost all of the last 24 hours – I awoke at about 4:30am and heard her talking to Larry and jumped out of bed to see her. She has been very thirsty this morning, but drinking is a struggle, and she coughs a lot. Talking is also very difficult, and she is trying so hard to talk to us to tell us what she needs. Her pain seems to be under control, and we are thankful for that.

• Download the 2011 Trinity Bright Halloween 5K Sponsorship Application.
• Download the 2011 Trinity Bright Halloween 5K Registration Form.
• Register Online

Race Day Registration: 6:30 – 8:00 A.M.

Event Start Times:
1 Mile Fun Run Start 8:30 A.M.
5K Start 9:00 A.M.

Entry Fee: (Late after 9/22/11 & On Race Day)

5K OR Fun Run: Adult $15.00
5K OR Fun Run: 15 & under / 65 & older $10.00
5K AND Fun Run: Adult (same registrant only) $20.00
5K AND Fun Run: 15 & under / 65 & older $15.00
5K Team Fee (5 or more adults / each) $12.00
5K AND Fun Run Team Fee (5 or more adults / each)(same registrant only) $17.00

(Late after 9/22/11 & On Race Day)

5K OR Fun Run (all ages) $25.00
5K AND Fun Run (all ages/same registrant only) $30.00
No Team Registration during this time.

For Information:
Call: Angel Bright-Lyle at 817-975-8070
Email: abright@forevertrinity.com

Awards:
5K
Overall Male / Female
Master Male / Female
Top 3 Male / Female
(In the following age groups):
0 – 10, 11 – 13, 14 – 19, 20 – 24, 25 – 29 30 – 34, 35 – 39, 40 – 44, 45 – 49, 50 – 54, 55 – 59, 60 – 64, 65 – 69, 70+

Packet Pick Up: (September 29th & September 30th)
Fort Worth Running Company
2401 West 7th Street #114
Fort Worth, TX 76107
(817) 731-1760

Register Online on Active.com.

Register Online on GetMeRegistered.com.

Download the Registration Form

Event Details

When: Saturday October 2, 2010

Where: Trinity Park Art Pavilion
2300 West 7th Street Fort Worth, TX 76107

Race Day Registration: 6:30 – 8:00 A.M.

Event Start Times:
1 Mile Fun Run Start 8:30 A.M.
5K Start 9:00 A.M.

Entry Fee: (Early by 9/20/10)
5K OR Fun Run: Adult $15.00
5K OR Fun Run: 15 & under / 65 & older $10.00
5K AND Fun Run: Adult (same registrant only) $20.00
5K AND Fun Run: 15 & under / 65 & older $15.00
5K Team Fee (5 or more adults / each) $12.00
5K AND Fun Run Team Fee (5 or more adults / each)(same registrant only) $17.00

(Late after 9/20/10 & On Race Day)
5K OR Fun Run (all ages) $25.00
5K AND Fun Run (all ages/same registrant only) $30.00
No Team Registration during this time.

For Information:
Call: Angel Bright at 817-975-8070
Email: abright@floorsinc.com

Awards:
5K
Overall Male / Female
Master Male / Female
Top 3 Male / Female
(In the following age groups):
0 – 10, 11 – 13, 14 – 19, 20 – 24, 25 – 29 30 – 34, 35 – 39, 40 – 44, 45 – 49, 50 – 54, 55 – 59, 60 – 64, 65 – 69, 70+

Packet Pick Up: (September 30th & October 1st)
Fort Worth Running Company
2401 West 7th Street #114
Fort Worth, TX 76107
(817) 731-1760

Sponsors who sign up and pay by July 9, 2010, will be included in marketing material for the event. Download the 2010 Trinity Bright Halloween 5K Sponsorship Application.

Sponsorship Levels

Presenting Sponsor – $3000
Company advertised in event marketing material
Company name and logo on tee shirt and water stop banner
Company banner displayed at event (provided by company)
Opportunity to place items in goodie bags
Mention at award ceremony
16 race entry fees
2 Promo tables
Plaque

Water Stop Sponsor – $1500
Company advertised in event marketing material
Company name and logo on tee shirt
Company banner displayed at event (provided by company)
Opportunity to place items in goodie bags
Mention at award ceremony
8 race entry fees
1 Promo table

Race Sponsor – $1000
Company advertised in event marketing material
Company name and logo on tee shirt
Company banner displayed at event (provided by company)
Opportunity to place items in goodie bags
Mention at award ceremony
4 race entry fees

Gold Sponsor – $500
Company advertised in event marketing material
Company name on tee shirt
Company banner displayed at event (provided by company)
Opportunity to place items in goodie bags
Mention at award ceremony

Silver Sponsor – $100
Company name on tee shirt
Company banner displayed at event (provided by company)
Opportunity to place items in goodie bags
Mention at award ceremony

Bronze Sponsor – $100
Opportunity to place items in goodie bags
Mention at award ceremony

Download The Forever Trinity Dream Foundation brochure to learn more about who we are and the wonderful things we do for children.

We will also be at all of the other RAT events across Texas!

Railroad Park is a 250-acre recreational facility in Lewisville that officially opened Nov. 2. The park, located on the east side of Railroad Street between FM 3040 and Business 121, has eight soccer fields, four football fields, four baseball fields, a dog park and a long-awaited skate park with a variety of obstacles including steps, ramps, rails and an in-ground bowl. This will be the first organized skate competition at the facility.

Created in 2009 by Dallas based Geiger Media, The RAT Skate Tour will consist of six events across Texas and Oklahoma. The series was created to give local skaters an opportunity to compete against their peers in a relaxed, fun environment. Proceeds from the Tour will help support the Forever Trinity Dream Foundation.

2010 sponsorship packets and registration brochures will be available shortly, so be sure to check back with us soon!

A Big Thank You to Our 2009 Sponsors!

Photos from the 2nd Annual Trinity Bright Halloween 5K

We couldn’t have made this Dream a reality without our friends, family, and supporters. Thank you!

Gracie’s Story

As told by her mother, May Kelly

Gracie, age 7

Instead of sending us home to wait for the results I was sent into a room to talk to Dr. Murray, the pediatric neuro-oncologist. I remember him asking me if I knew what an oncologist was and telling me that my daughter had a brain tumor. Everything happened so quickly after that. My daughter was admitted and underwent an operation to remove the tumor. However, that operation was unsuccessful, and we were told that her tumor could not be removed. She was diagnosed with a slow growing brainstem glioma. She was put on a chemotherapy regimen and then radiation. The tumor has remained “stable” on MRI scans.

Through it all Gracie has been strong and brave. Her world has been turned upside down, but she has never complained. She is our hero! At this time, based on her symptoms, her tumor continues to show signs of clinical progression. She continues to vomit, has chronic sore throat, intractable hiccups,some hearing loss in her right ear,and, most recently, numbness in the right side of her face and difficulty walking. We have been told she has received the best standard of treatment and there is not much else that can be done. As her parents we continue to search for our miracle. We are hoping and praying for the day when all of this will be a distant memory!

On Sunday, May 17, 2009,  Gracie received her “dream” vacation to Walt Disney World.  This “dream” was made possible by our supporters, family and friends.  It is truly amazing what the foundation has accomplished in just four short months.  We couldn’t have done it without you!

Gracie’s magical journey includes:

• A pool house condominium from Saturday, May, 23, 2009 through Saturday, May, 30, 2009.
• 3 day Park Hopper Passes to Disney’s Magic Kingdom, Epcot Center, Animal Kingdom and/or Hollywood Studios theme parks.
• 1 day passes to Discovery Cove, where Gracie and her family will enjoy a private cabana, swim with dolphins and snorkel with beautiful marine life.
• Multiple day passes to Sea World.
• Multiple day passes to Aquatica Water Park.

Our love and prayers are with the Kelly family as they make their journey and hope that it is filled with all of the magic and excitement Gracie dreamt of!!