Hey Angel just thinking of you! Hope all is well!
Hi Angel,
We are thinking of you lots, especially at this time of year. Sending you love and hugs,
Kristen, Rick, Robbie and Cassie
The 5k was AWESOME. So proud of you Angel for getting this together - it was a great time, and in my opinion better than last year :) I know Trinity is proud...I love you both!
i have been following regan richards website since we met regan at st jude hospital. i had read some of your caring thoughts and clicked on your website about trinity. You are amazing to start such a great foundation for children with this disease. my daughter emily delgado also has dipg and was diagnosed on 12/02/2008 which happen to be her sixth birthday. she recieves her care at st judes and we had just found out that her tumor has started to grow. trinity was such a pretty girl she reminds me of emily when she had pretty long brown hair. our caring bridge site is emily delgado if you would like to see her . thank you and once again your an angel.
I only told of my story because I know, or have close of a feeling to losing someone that way. I could only imagine if I was in your situation.
Feeling as if it was all a bad dream. I still cannot stop thinking of her. So brave, courageous, beautiful, talented, a risk-taker! I can truly say she's my hero..
I don't have much to say, but this story touched my heart. I can say that I actually cried reading this. And I thought I was having a bad day...
About two years ago my little cousin who at the time was 10 was diagnosed with a tumor in her head. It was a rare type of tumor that only came to be in children ages 5-10. I remember that they told me the news on a friday. Saturday it was confirmed. Sunday the whole family; aunts, cousins, parents, grandparents, we all spent the whole day with her. The next morning I was early in her hospital bed. But I did not know that her surgery had been rescheduled for 8 am instead of 10 am. Neither did the family. So I had to stay and watch as they took her away for surgery that monday. Her father couldn't hold his tears and her mother sat in her bed as my cousin clung to her arms saying "mommy Im okay now, my head doesn't hurt anymore, I swear it doesn't. lets just go home" We tried to calm her down and I promised her that as soon as she was out of the hospital she would go to disney world, just like she always wanted to. We did not know it was cancer then, till during surgery that they took a piece of the tumor and examined it. The tumor was in the center of her head, so anything could go wrong. Blindness, loss of hearing, vegetable state, paralized, even death. Since my family speaks spanish, and they did not have a translator at that time to tell her parents that it was cancer, I had to be the one to tell them. Back then I was only 16. I didn't know what to say. I explained carefully. And kept up with the doctors the whole 7-9 hours of surgery. Shortly, weeks after, she had to go to radiotherapy and chemotherapy. We've been blessed that she is done with that treatment, it made her even sicker. Since then, her checkups have been good and there is no relapse...hopefully there won't be any.
Trinity's story has really touched my heart..and I will pray for her every night, and keep her in memory.
I would very much love to contribute to the foundation. You will see me there running the Halloween 5k. Running is one of my passions, and contributing to such a compassionate foundation brings me even more joy.
It would be such an honor to run for such a cause.
Angel, I just wanted you to know that your Trinity will forever in my heart. I am so, so blessed to witness your journey.
Angel,
This website is AWESOME!! I'm so proud of you!! You're such a GREAT Mother!!
Trinity,
I miss you so much.....I think of you all the time and still wear my bracelet with such pride. I own 4 bracelets to keep you with me always...1 at work, 1 in my car, 1 on my wrist and 1 on our Christmas Tree.
My hat goes off to the family for preserving Trinity's memory . She was a brave girl . May God Bless you and the work that you do . I thank Harold for letting me know about your foundation
I just wanted to thank you guys for providing Gracie and her family with the trip to Disney. I am John's cousin and have been trying to help them out as much as I can as I am the only family they have living in the area here - but I could never do for them what you guys have. It's great that your families have found each other, but unfortunate considering the circumstances. I loved your story about Trinity's skydiving adventure and am glad she was able to do it after all your hard work searching. Please keep up the great and loving work you are doing. Thank you so much.
Angel,
I just wanted to say how touching your story is, and how sorry I am for the loss of your precious, beautiful child. Thank you so much for your compassion, you are a blessing for sponsoring Gracie Rose in making her dreams come true.
Becqui - Gracie's Geat Aunt Cindy's sister
Thank you Forever Trinity Dream Foundation for supporting Gracie & her family and sending her off to Disney World!!! I'm spending the week here with them in NC and they had a great trip. You all are amazing. I'm so sorry for your loss but thank you for turning your story into a blessing for other families.
Leah (May's sister and Gracie's aunt)
Think of you often. It has been a while since I last posted. Keep your wonderful work going in memory of Trinity. I know that she is looking down & is so very proud of her mommy & daddy & all of the beautiful work that yall are doing for others just like her. You are an amazing couple. 4 Ever Remembering Trinity.
Lots Of Love Hugs & Prayers
From Georgiana Alabama
I pray for you all and keep up with all of the activities through Paul. This is a wonderful way to honor Trinity's memory and spirit. Keep up the good work...
Thinking of all of you. This is a beautiful website and it's so incredible what you are doing to help other children with terminal illnesses. You are to be admired and Trinity must be so proud of you. God bless all of you. Lots of love, Kristen, Rick, Robbie and Cassie
ok my eyes are wide open .. 1st time i cry in yrs anything you need just ask
WOW!! I am so sorry for your loss but happy that she is in heaven with god and no more tumor. I would like to start selling craft lace boxes to raise money for yall to give to others with diseaces. Thank you for listening.
Wow! What a wonderful thing you are doing in memory of Trinity. I actually came to learn of her story when members of your family purchased engraved garden stones and had us engrave "Forever Trinity" on them.
I find it quite touching that through the Forever Trinity Dream Foundation, you continue to keep her spirit alive.
If possible, I would love to have a button (logo) from you so I could put it on my website in an effort to direct my site vistor's to your site.
You guys are awesome!
Angela De Benedetto-Fioresi
I have followed Trinity's story since September of 2007. Your family's story has touched our hearts. This is such a great opportunity you are giving other families. I will continue to check your website for follow up's and I will continue to pray for your family.